Organic Acidemia Association
Information on organic acidemia's (metabolic errors)
NORD
GA1 Specific- Information on GA1 and support groups
NORD
National Organization for Rare Disorders, Inc. -general-
Resource Directory
Resource for children with special needs, medical assistance and support groups
MUMS
A unique support group which teams you up with a child with a similiar "need"
Dietary Specialties, Inc
Low Protein foods resource
Mayer Johnson Inc
Products for special needs and education
Rifton
Solid maple furniture, toys and equipment for children with disabilities
Snug Seat
Good site for walkers, wheel chairs and adaptive equipment
PKUMAC
The Mid-Atlantic Connection for PKU and Allied Disorders, Inc
RTDMC
Research Trust Metabolic Disorder Center. Based in England. This is a good site to use as a resource guide, they link families, sponser medical conferences, etc.
Meditronics
Drug Company that makes Baclofen and Inrathecal Baclofen pumps for spasticity
ISAAC-
International Society for Augmentative and Alternative Communication
Genetic Alliance
Advocacy Organization for Genetic groups. They sponsor annual workshops and conferences and put out numerous newletters.
Save Babies Through Screening
Formerly the Tyler for Life Foundation, Inc. This is a non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening.
ABLENET
Poineers of low to high tech communication devices.
Sigma-Tau
Pharmaceutical Company and makers of Carnitor
Pediatrix Screening
Information supplemental newborn screening
Carnitor
Sigma-Tau's website on Carnitor (carnitine)
Rare- Diseases
Office of Rare Diseases
Clinical Trials
Clinical trials for serious or life threatening diseases
NUCDF
National Urea Cycles Disorder Foundation
Cambrooke Foods
Supplier of low protein foods. Products include: bagels, breads, pastas, cheeses, baking products, snack foods and chocolates
Clinic for Special Children
Homepage
Altimate Medical
Standing frames and mobility aids for people with disabilities
